Category Archives: Auto Immune

Bra and Socks Optional

Wow.  It’s the middle of November!  Where has the time gone???  The holidays are imminent and there is so MUCH to do, so LITTLE time and ZERO energy!!!!  This morning, I could barely open my eyes, much less reach out and answer the phone when it rang.  The stiffness and exhaustion are so overwhelming.  So I rolled over and stretched.  And rolled over and stretched again.  Then I rolled out of bed.  I picked up my bra and…and…tossed it on the dresser.  That’s what those sweet little $1.68 camisoles from Wal-Mart are for, right?  I pulled on one of those, grabbed a stretch knit pull-over dress from the closet and slipped my feet into the memory foam in-soled, cheap slip on tennies under the edge of  the bed.  One spoon instead of three for getting dressed.

Next, stop to pray for the day and ask God for HIS strength and HIS endurance.   Thank you LORD!!

Oh man, why did I have to look in the mirror.  *Note to self:  Bathrooms do NOT need a whole WALL of mirrors.  Well, stop and praise God.  I HAVE hair, and most of it is on my head.  Another spoon goes to brushing and fastening my hair out of my face so I don’t have to deal with it all day.

Now on to the day’s tasks.  I wrote out this wonderful list on Monday, of everything that I needed to get done before my son and his lovely lady arrive next week.  Today is Wednesday and I’m already a day behind.  But, I padded the list with three extra days to rest before they arrive, so, with the help of my hubby and sons, we’ve got this.

Ladies and Gentlemen, I am praying for us all to have the Strength and Endurance of our Loving Heavenly Father as we juggle the extra stresses of the Holidays, and that we prioritize the true meaning of the season over the busy-ness and take care of ourselves in the process.  Have a Blessed day!

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“You Have Sero-Positive Rheumatoid Arthritis….and Chronic Fatigue Syndrome. Your body is attacking itself. ‘IT’s’ all Auto Immune related. ‘IT’s’ Chronic and there is no cure. All we can do is try to put it in remission.”

“‘IT’s’ Chronic and there is no cure” echoed through my brain.  At least ‘IT’ had a name now.  Rheumatoid Arthritis… Chronic Fatigue.  My mind was reeling.  ‘IT’ was real.  I wasn’t crazy.  Dr. after Dr. couldn’t put their finger on ‘IT’, but “Try this…” or “Eat that…” or “There’s nothing wrong with you that a diet and exercise won’t cure.”.  I DID diet.  The less I ate, the more I gained.  The more I walked, the more I hurt.  My hands and fingers ached constantly.  A simple squeeze of my hand would send me through the roof in pain and bring tears to my eyes that I tried to hide.  My feet hurt and swelled.  I bought shoes a size larger than I had ever worn, with memory foam insoles.  It helped, but it didn’t fix ‘IT’.  If I stood at the sink or the stove for more than just a few minutes at a time, my back and hips would throb.  I was exhausted all the time.  I would go to bed exhausted, toss and turn trying to find a comfortable position that I could fall asleep in.  I would feel my pulse throbbing up and down in my spine.  My legs would jerk and kick.  I would get up 8 hours later, just as exhausted as when I went to bed.  My family and friends just didn’t get ‘IT’.  ‘IT’ was taking over my life.  Looking back on the months of feeling like I was going crazy, I realize that God was there, guiding every step of my journey the whole way.  There is a time and a season, a plan and a purpose for EVERYTHING that we encounter in life.  ‘IT’ has opened my eyes to the invisible diseases and the toll that they can take on people’s lives, emotions and families.  My heart and soul were suddenly filled with compassion and a need to show others that in allowing God to take control, there is hope.  On a path where each one of us is so unique, that the treatments which work for one of us, won’t always work for another, the trial and error method of finding just the right combination can be very taxing and stressful in every aspect of our lives. Stress triggers our immune system to attack harder and it becomes a vicious cycle through which it is very easy to lose sight of God. The purpose of this blog is to share my journey, and how God has Blessed me, and is daily guiding me through this.  People who understand ‘IT’, and live with ‘IT’ everyday.  I’m not an expert.  Nothing I say is to be construed as medical advice in ANY way.  My goal is simple.  If my ramblings and artwork can encourage you in any way, Praise GOD!  I want us to be each others’ prayer warriors as we take this journey together. Thanks for stopping in, and please share this with your friends and family.

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